For those of you who don't know, Tracey was diagnosed Sept 07 with a hemangioma on her left arm. That's an abnormal growth of your blood vessels. When you search hemangioma on the internet usually you will find pictures of kids with horrible red, raised lesions various places on their bodies. Tracey's is under her skin and the only indication is knots under her skin. If you feel around, you can feel hard little bumps that they say is calcification. (They showed up on the x-ray and the PA actually asked me if we'd been hunting lately! Ya, I shot my daughter with the shotgun and am lying to cover it up! What a moron. I think I've posted about her before.)
Anyway, we finally ended up seeing a doctor at UNM-H in Albuquerque who diagnosed it for us. She's been in contact with surgical team in Boston (Vascular Anomalies Center at the Children's Hospital in Boston). We take Tracey back every six months to get it checked. Yesterday was one of those checkups.
As we were waiting in the room, the secretary came in apologizing and said that we really didn't need to make the trip up to Albuquerque (don't forget...we live in Silver City...4.5 hours away!!!). Fabulous...and why didn't she call me and tell me this before??? Anyway, she had a questionaire from Boston for me to fill out and then the doctor looked at Tracey's arm. They told me that the surgical team meets every month and at that time they will review Tracey's file (photos, MRI, etc) and determine whether or not she needs to have surgery on it. I will get into the details of surgery later...if/when that's what is determined that we need to do.
So we're back to playing the waiting game...as we've been for a year and a half. The last six months or so it hasn't been bothering her much. Before, it would bother her in the mornings or if it got hit. Except for when she had the IV in that arm when she was sick around Thanksgiving time, we haven't had really any problems with it.
So we wait....